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Worthless Girl

This is a new song I wrote. It’s a working collaboration with my daughter. A new video will be coming very soon for you to enjoy.  -JustOrdinary

worthless girl

 

I’m digging my way out

Of this hole you tried to bury me in

I’m reaching for the light

I will put myself together again

Piece by piece

Hear me when I say

I’m not the worthless girl

Hear me when I say

I’m not the one at fault

The world will see what you’ve done

In my flawed reflection of you

My blank stare of destitution

They will see me weeping

Though tears will not flow

Hear me when I say

I’m not the worthless girl

Hear me when I say

Hear me….(background vocal lightly echoing)

Hear me…(background vocal lightly echoing)

I’m the flawed reflection of you

The reflection in your eyes

And it’s the battle within that you never win

Because it’s you, that you’ve been up against

Hear me when I say

You were not the worthless boy

You were never at fault

Piece by piece

Piece by piece (background vocal)

Hear me…(background vocal)

Hear me…(background vocal)

My minds made up

Hear me when I say

I’m not the worthless girl

I’m not at fault

And my minds made up

There’s no going back this time

Please hear me (low whisper singing)

Please hear me (low whisper singing)

All the damage that’s been done

Is locked inside my head

But piece by piece (increase vocal sound)

I’ll be whole again (increase vocal sound a little more)

But hear me when I say (Increase vocal sound even more)

I’m not the worthless girl (End with a soulful loud vocal line)

Surviving trauma, one day at a time…

roadrecovery

Who I am today was created by the trauma I survived when I was a child growing up in a chaotic environment. My mother was a schizophrenic with chaotic reactions and violent answers to her delusions. I received the majority of her violent episodes. Actually I am not sure any of my brothers received any violence from her. Perhaps I was the only one she lashed out at. I cannot speak for my brothers. I can however share with you my own personal trauma and things I developed to help me survive the nightmare of having a schizophrenic mother. Things I never knew I did until I entered therapy.

There would be times that months would pass without her chasing me around the house with a fly swatter. There were also times it seemed to happen so often I just wanted to die. I never knew what was coming next. Peace or war?

As a very young girl, grade school age, I didn’t understand what was wrong with my mother. I simply thought she hated me. I thought she was jealous of me for being the only daughter out of five children. I spent years wondering what it was I did to her and why she didn’t love me like my dad loved me so. She did not get a diagnosis of being schizophrenic until I was entering my teenage years.

I have very few pleasant memories of my mother. Our relationship was a very volatile one. I have many beatings I can recall. I can recall the verbal abuse I endured. I can recall the dishonest games she played in hopes that my dad would punish me. There is something that happens to the mind and memory when you live through a trauma I learned from therapy. The severity of cognitive impairment on the brain can depend on how long you endured the trauma and how severe the trauma itself is or was. My therapist said it is a miracle that I did not end up having split personalities.

I have often wondered why I could not recall clearly how old I was with some of the events that happened to me. I learned in therapy that my brain had created memory bubbles that would retain very limited information or memory of the traumatic event. It is or was a survival technique I have and you have as well. Another thing I learned in therapy was that many people who live through trauma have a tough time recalling time of the event, or how long it might have lasted. The brain does this to help protect itself from the trauma. The brain attempts to dissociate. Dissociating is also known as compartmentalization of the memory or memories. This process can cause confusion, anxiety, paranoia, fear, withdrawal, feelings of being disconnected or numb, guilt, shame, shock, denial and feeling hopelessness. Childhood trauma can cause permanent effects on the personality of the person who lives through the trauma. There were many years I had to piece together through therapy to get an understanding as to when it was happening and how long it went on. I have many events still confusing for me that will take more therapy to piece together. I am a masterpiece in the making. I say masterpiece because I survived it all. I may have damage left to repair but I am alive and I am sober.

I would have nightmares many nights. I remember my first thoughts of suicide came to me when I was around eight or nine years old. It was around this time I started putting pen to paper as an attempt to escape all the terrible things happening to me. I started out writing dark stories and dark poetry. I would draw dark figures and draw my nightmares onto paper. The writing started out as a cry for help but when no one heard the cry I decided to start creating my own worlds where the bad things eventually ended for the characters. I dreamed of and created paradise. My writing became a tool for survival.

My dad did not have a nine to five job. My dad worked from home, repairing electronics. He must have known my mom was mentally ill many years before she was diagnosed and is most likely why he worked from home. It was his way to help prevent harm to us. Unfortunately he was gone sometimes for long periods going to the auction house to fix electronics, to make money. This is usually when she would have violent episodes. When my dad was around the physical abuse never happened. Though I remember a few times he walked in while she was in the midst of beating me and he stopped it. I recall sometimes the verbal abuse would happen even with my dad home. He would yell at her and tell her to shut up or knock it off and she would.

My mother was obsessed with demons when she had many schizophrenic episodes. Her mind would tell her that the devil was trying to get me or she would swear I had demons inside of me that she had to get out. Getting those demons out usually involved her chasing me around with switches, thin tree branches from the trees out front, an extension cord, or the metal part of the fly swatter. There was a few times she put me in the tub with very hot water when I was around seven years old. I can recall one time she put ice cold water in the kitchen sink and forced me to hold my hands under it.

As far back as I can remember I was afraid of my mother. For a long time I hated her for these things I had endured. Growing up thinking that your mother hates you can make you a very angry, messed up child, teen and even an adult. I thought she hated me because I would see her treat my brothers so differently. She would cook potatoes, pancakes, whatever they asked for. She would refuse to get up with me to help me get ready for school. My dad would be taking my brothers to high school and I would be left home while mom slept to get myself ready at age five. I usually went to school with nothing to eat, my clothes mismatched, sometimes dirty, and probably inside out if my aunt or dad didn’t help me fix them.

From the very beginning of my school life I avoided forming friendships. I had already endured enough abuse that I felt ashamed, embarrassed and scared. I would not have friends come over to my house until my middle school era and even then I can count on one hand how many came over.

Not only was I living a life of sexual abuse from others, physical abuse and verbal abuse from my mother, but we lived in a very poor household that was not clean. My dad always had the house full of televisions and electronics and my mom was a hoarder.

I did develop one friendship where I could share my secrets to a safe person outside my home. That friendship was Andrew. I was able to share everything with him. That friendship lasted his whole life. I went back home to bury him July of this year. It was one of the saddest things I have done. I will forever be heartbroken that he is gone. I think having him growing up helped me to survive.

The sexual abuse and the abuse from the schizophrenic episodes my mother and having an abusive man in my life at age 18 has shaped me into this very guarded, skeptical, damaged woman today. This is what I am going to discuss tonight. A clear repercussion of being abused for almost half of a lifetime starting at a very young age.

I form very few strong connections with people. If I deem them trustworthy I allow them in to a point but always keep myself detached from them. I learned that this is a survival mechanism I formed growing up. Even now at age 36 I am constantly preparing myself for things to fall apart especially if things are going well in the relationships.

Growing up with such trauma in my life has rewired my thinking. When I start to have a successful relationship emotionally I am preparing for the sky to fall at any moment. This pattern formed when I was a little girl for a way to protect myself from trauma, and hurt. I detached myself from the people around me and the traumatic events happening. It helped me survive, and it helped me be numb from it all. Though this was a very good survival tool growing up, this detachment pattern as a grown woman has become a huge challenge to overcome. I am still working on noticing the steps I start to take in detachment from my family, and my friends. There are times the detachment is so quick and easy. The quick and easy detachment is easy to understand. If someone hurts me badly they do not get do-overs. I cut them out of my life instantly without looking back. I have done this with friends, and even blood relatives with no regret.

Sometimes I do not realize I am disconnecting. It can start very subtly until I have put myself at a safe distance to completely remove the person from my reach and my life. In these instances sometimes I can bounce back towards those whose surround me and attach myself emotionally. The trouble staying attached to those around me comes from fear and paranoia that they are going to hurt me, break my trust, or cause me trauma. I always feel like I have to guard myself from harm coming my way. This pattern was created in me through years of traumatic events I had to live through. I am making slow progress to stay attached longer or detach myself for shorter periods before I go back into the relationships in my life but it is a trying effort.

I am a very complicated and confusing person when you are in my inner circle. The person this is hardest on is my husband. There are many times throughout our relationship that I have completely disconnected from him because of hurt he has caused. Over the years the hurt built up and became a whole lot of harm done to me emotionally that I ended up so disconnected from him that I wanted to divorce him. I truly thought at some point in our relationship that it was over. I did not think I could come back. I still have struggles in staying connected to him. I still have trust issues with him. We are a work in progress.

If you are close to me, you are in my inner circle, and I can be a very confusing relationship for you while you are in this circle. I can push you away without any reasons apparent to you. You will notice I am shutting you out but will most likely have no idea why I have pushed you away, or distanced myself. I am more likely to notice I am doing this today with having years of therapy under my belt now but there was a time I was completely oblivious to my actions. The lack of understanding my disconnect from people and what I was doing has cost me many relationships over the years.

If you find me distancing myself from you and you are in my inner circle the best advice I can give you is respect my space and give me time. I always return to my inner circle unless the act against me is so devious I cannot move past the action against me. If it is something I cannot move past the disconnect will most likely be swift and permanent. I distance myself from my inner circle often to evaluate my relationships often. I am constantly asking if my inner circle is trustworthy and I will think over moments shared with each relationship and judge them on it. I have serious trust issues as I have talked about before. Every relationship I have had has either hurt me physically, emotionally, or verbally except for my friend Andrew, and my dad.

I learned in therapy that the loyalty I seem to possess came from my dad. I think he stayed with my mom, even with her being seriously mentally ill, out of loyalty perhaps to his kids. I never viewed his loyalty as being loyal for love. My trauma made me a cynic about loyal love. I believe my relationship with Andrew helped me have a more positive outlook about friendship. Therefore allowing myself to hold friendship to a higher standard and place over love. In other words I view friendship as forever, and love, or men as something that comes and goes, easily replaced.

My loyalty to my husband most of our relationship has been out of friendship. He has always been my friend first. This is how I eventually allow myself to love deeply. Our friendship eventually evolved into deep love. The things he did over the years that hurt me eventually numbed that love for him and when I became completely disconnected from him my loyalty to him became loyalty to my children. In other words if we had not had our beautiful daughters I would have walked away and never looked back. We have children so my loyalty to them pushed me into therapy with my husband. This of course was formed inside me from my view of my dad sticking it out with my very ill mother.

I learned in therapy this is my pattern over time when dealing with being hurt by those close to me. The pattern my husband and I have lived through is all about my past trauma. It has been a tough, long ride on a roller coaster. I still have work to do and so does he. Perhaps this will be something we have to work at the rest of our lives. The goal is to not return to the point of me being completely disconnected from him.

Another thing I do is constantly look for outs in relationships. I seem to constantly look for the reasons to cut and run from them. In some cases I seem to use other people as an out. This over time has created an insecurity in my husband. This pattern I have from past trauma now has built in him the idea that he is easily replaced. Of course he is easily replaced on the surface with my warped sense of what love is supposed to be, what it is and isn’t. My insecurity dealing with love makes it a constant battle to try not to repeat these offenses against him.

On the surface it seems he is easily replaced but deep within me I know he isn’t. I know deep within me I love him with my whole self and that alone makes me terrified of the hold he could have on me or has had on me in the past. It makes me vulnerable and another thing I cannot deal with properly is vulnerability. This is something that is born out of the trauma I lived with for half of my life as well.

I respond negatively towards jealousy, attempt to control me, lying to me, cheating me, being too needy, having lack of acceptance for me, and if you are too judgmental against others who are different I will start locking myself away from you.

These are the things I need in all my relationships. I need you to remember you cannot keep me to yourself, or be possessive. I need you to understand I do what I want because I am a free person and love my individuality. I need you to be honest with me about everything so I can trust you. I need you to accept who I am even the dark and twisty things about me. I also need you to respect others and differences in them. I need you to show me you are an honorable, pleasant person, who can be trusted with the darkest secrets I may have to share with you. You do this and I will love you like no other friend can. If you can’t do these things all I ask is that you do not approach me or attempt to hold onto me as a friend. Save time and hurt and just move on. I have high standards set for my inner circle and if you can’t meet them you will not get in. I was made this way by scar tissue from living half of my life in trauma.

The scar tissue reminds me I have survived some very dark times. Therapy reminds me that not every relationship is hurtful. I remind myself to trust myself above all else. I can only attempt to be a better person and attempt to have healthier relationships in my life. I cannot go against the things I believe in. Meet my standards or meet the freezer.

standbyme

I have serious trust issues!

 trust

Some days I get this overwhelming feeling that I will not survive the day I am faced with. The feeling comes from struggling everyday with chronic illness, pain, loss, and insecurity in me.

Everyone around me, including my husband and children, never really get the internal person I am. The people that surround me see this strong, happy, enduring woman who lets her ambition drive her in everything she decides to take on. In reality though, there is this other woman who lives deep inside that rarely gets seen. This woman who lives deep inside is a scary one. I do not let her out very often for fear it will be used against me. Perhaps this is because my entire life things have been used as weapons against me. I have serious trust issues!

In all honesty I feel alone most days. It isn’t an alone that is repaired by having people around me either. It is hard to explain the loneliness I feel on a daily basis. To have success in conquering it I need to understand it and I do not. I find myself ignoring it most days by keeping busy. It is a temporary fix to a serious long term problem. Eventually I get to a point I can no longer ignore it and keep busy. It becomes so prevalent that is distracts me in many ways and it exhausts me. I eventually write as some way to alleviate it. Again I use a temporary fix to a long term problem. I know it is long term because I have dealt with this loneliness since I was a little girl. I have been a sick person my entire life and I believe this is where it originates. It escalated after I lost my dad at age eighteen. Every loss after that little by little it got bigger, and now with the loss of my lifelong friend, Andrew, it seems even larger than ever and makes me wonder what happens when it becomes so big I can no longer carry it around. It is a frightening to me because most of my life I have struggled with suicidal thoughts.

I have thought a lot about suicide lately. I haven’t thought about it as in I’m contemplating my final exit, but thinking about all those I have lost to suicide over the years. I also have been thinking on Robin Williams taking his life. I wonder if they felt the same way I feel with loneliness and eventually just decided to not fight anymore. What made them finally give up? Did they feel something else that I do not feel? Will I just end up like them one day? Will I be successful in this fight and be able to cope? When I think about Robin Williams, one of the most successful actors known, taking his life, I worry that if a man of that stature cannot handle things, what makes me think I will be any better. I am not financial set up like he was. I do not have a stage of the magnitude he had access too, to help him alleviate his worries. These are just some of the things I think on and not the darkest of them either.

Sometimes I find myself wanting to shut the entire world out. I find myself just wanting to be all alone so that I do not have to deal with anything outside my pain, illness and depression. My stuff is heavy enough without adding worldly things on top of it. It gets hard to work, parent, love, welcome, and interact.

Some are probably wondering if I have a relationship with God or a higher power. I do and maybe that is why I have made it as far as I have in my life conquering all the terrible events that have happened and demons that I carry. Maybe that relationship is the strength that keeps me going towards success against the suicidal thoughts and loneliness I feel. I would like to believe that I would never end my life on my own. I love life, I do. I love being a mother to my growing daughters. In the back of my mind I think about those who have actually taken their lives and think well they probably loved their kids too. They probably loved life too. What if I get where they were in their final moments? How do I prevent that? Can I prevent that?

I have questioned heaven since my dad passed in 1996. I wonder where it is he rests now. Is he just gone or is he really somewhere living a new life? Is it heaven? Has he any recollection of his life he left? Does he know I am here still? Does he see me? Does he live pain free and cured of all ailments? Can he hear me? Why can’t we communicate if these things existed? I would love it if it were all true, the story of heaven and angels silently flying around us, remembering who we were to them, but I have serious doubts that exists. I do not ask these questions just about my dad but everyone I have ever lost. I guess this is where faith comes into play. Faith is a very hard thing to understand. How do some people have such strong faith and others have little to none? Why do they differ so much? What is it about the person who has strong faith that lacks in the other? So many questions with no definite answer make spirituality and religion the most confusing thing I have ever seen.

Do I need to remind you I have serious trust issues? The circle of people who surrounds me closest knows the most about me, but still they do not have a complete picture of who Rachel really is. I am not sure they ever will. I have only had two people I can say knew me completely. Those two people are gone now. It isn’t that I don’t want my closest circle of friends to know all of me, I do! I just find myself struggling with allowing them to know my every thought because I have let people in who have burned me deeply. So that leaves me with thoughts I do not share with anyone at all. I hold them in and lock them away inside. So internally I struggle daily on my own with those secrets. Eventually I come here to my keys to release some of those secrets because most who read this blog do not know me from Jane next door. I am somewhat protected here. Even here I hold back because of the people who read this DO know who I am have used what I put here against me and it is very hurtful. I have no place to be completely open about WHOM I REALLY am inside.

The best example I can give you would be the loss of my friend Andrew. It never crossed my mind that I would go home to bury him. I always imagined he would out live me. I always thought he would just be there. I can’t share some of my feelings with anyone because some it would be hurtful maybe to others. Maybe it would be wrong to say it out loud or maybe it is wrong to feel it. Maybe I shouldn’t miss him as much as I do. Maybe if I say it out loud it will be a bullet used to shoot back at me. Just some things I see as complications that I am not ready to tackle so I hold it all close to myself. I also wonder what it all means. Why has losing him been such an impact on me internally? It makes me question so many things.

Another example is my struggle with sobriety. I cannot even release thoughts on that here out of fear it will be used against me.

Some are probably wondering why I do not just keep a private diary. The main reason is I want and need feedback about my thoughts. I need people to interact with me and tell me if I seem crazy or if I seem to normal. I also wonder if my thoughts are normal. Do others have these battles etc? It feels good knowing others struggle with the same sort of thoughts, and problems. It helps getting advice too on these subjects.

I think I worry too much. I worry about being sick. I worry about my health preventing me from being successful in college. Am I biting off more than I can chew? Will I have the support in my life to finish and not give up to quit once I start? I need peace. I want peace.

I am finding it harder to find peace. I use to be able to go out into nature and have peace. I do not seem to get that anymore. My constant worry and thoughts seem to always be there. They never seem to quiet. It has gotten so much worse since Drew has passed. I loved him and I have no one who would really understand what that means or why it is that way. I miss him every day and if I would say that out loud it would be used against me I know it. It might even get used against me being put here. I feel wrong for loving him and missing him and that is not fair to me. He is gone forever. There is no chance of me EVER hearing his voice, getting his advice, joking with him, or telling him how important of a friend he was to me. So this is just one thing I am alone with.

I do not write posts here very often. I am guarded with my thoughts because it can be used against me; it has been used against me. Yes, I have serious trust issues.

trusted you

For the love of…

brokenheartnow

I have been going to counseling now for about six months or so with my husband. The main reason for going was my marriage was over, or so I thought it was. Maybe it still is…this is what we are trying to figure out in therapy. We were in crisis mode when we decided to go. I had fallen out of love with my husband who I have been with for fourteen years.

It was not just one thing he had done to me that brought us to that point. It was years of neglect and many stupid things he has done, and things he said that built up and brought us to that crossroad. Through the years I tried to explain to him, I tried to show him, I tried to convince him, hell I even asked him to go to couple counseling with me. It took me to tell him I wanted a divorce to finally shock him into going to counseling. I was not impressed. I had been so detached and neglected I did not want to try counseling at this point. My thought was, “oh, NOW, you want to try counseling, what about last year when I asked?” When I mentioned therapy for us the previous year I told him I was feeling very insecure in our relationship and asked him to go. His reply to me at that time was, “You do need therapy, you are crazy not me.” So you can imagine how I felt with him, now ,after telling him I wanted a divorce, he was willing to try this counseling thing.

The first month I was not impressed. It took a long time to bring down the wall I had built. It took a long time to attempt to replace anger with something healthier. I still find myself detached from him quite a bit. Honestly I am not sure where our future is leading us…I agreed to do a year of therapy with the counselor because she said it would probably take that long to get us where we should be. So I plan on keeping my word because that is what I do. I am loyal.

I’m not fighting the therapy like I was in the beginning. I am letting it sink in and I am taking the advice on how to get back on track. I am doing this because I have seen my husband trying to make things better. He has realized many things through therapy…though I think he has a lot more to learn…I will try to be patient in this journey.

A huge part of me is scared that I will never feel attached to him like I was just a few years ago. I love him but I still have doubts about being “in love” with him. I have tried to find the main trigger that creates this detachment in me. I have figured out that it is the past crap he’s done, said and the years of neglect that remind me he is untrustworthy. I am not exactly sure how to get over that. I am not certain he is doing anything to remind me of that or if he is doing things that subconsciously remind me. That will be my next session with therapist.

I understand that love grows to different stages. I understand that the newly wed love stage will most likely not return for us but I know passion could if we could just stay attached. The problem with that is I can’t seem to stay attached to him and I am not 100% sure I truly want to. He is indeed untrustworthy to me. I mean he has said things to me that are awful. Was he lying when he said those things? He doesn’t believe those things now because why? Because I was actually leaving this time. See what I mean?

I am not claiming I’m perfect here. I know I’ve called him an asshole over the years. I have told him to fuck off more then I can count. I will tell you though I have NEVER said something so harsh and hurtful to him like he has done to me. This is where we still have serious problems…

I can’t forget the times he has told me I am crazy. I can not forget his reply when I wanted to go back to school was, “you can’t even clean my house the way I like what makes you think you can go back to school”, yeah, that was my breaking point. It was shortly after that I finally just said I wanted a divorce.

That was around March of 2012. It all came together right before I got hired at my current job.

I have noticed lately he is more likely to slump back into old habits. When he starts to do that I immediately detach. When I say detach, I don’t mean minor isolation, I mean detach as in putting myself on an island with no way onto that bad boy. It is very hard for me to reattach too. I understand I detach so much because it was many, many years of neglect, abusive spoken words, and snipping away at the trust. I am not sure we’ll figure this out but I am willing to finish out trying to do so.

I am not happy with him like I think I should be. I am not even sure I ever will be again…I do love him a great deal. He is a wonderful father. He isn’t a bad person. We have had many great memories. I wouldn’t wish anything bad on him either. But, I use to look forward to talking with him, going places with him, I use to respect his opinion…these days I still don’t give a shit either way…I try to give a shit but deep down I don’t most of the time…a huge part of me feels guilty for those feelings but I just don’t know what to do…will that change with continued therapy? I don’t know…stay tuned.

Living with chronic pain & being a recovering addict = chronic battle

sickandtired

I want to talk about being sick and a recovering addict today.

Let’s talk about being sick first. I just recently had a rheumatoid doctor diagnose me with Anklyosing Spondylitis (A.S) and well though we have thought for a long time I’ve had this disease we waited as long as we could to medicate me with immune suppressants. I came to a point in the disease I had no other choice but to start on humira. It is an injection I take every two weeks. I give it to myself now.

I was waking up so stiff I needed help to get out of bed when I finally went to doctor for medication for the disease. It became horrible. I have been on humira since May of 2013. I have noticed considerable change in my body with the medicine. It has been such a change that I wish I had gone on the humira sooner then what I decided. I avoided the medicine out of fear that it suppresses the immune system. I am still concerned about it making me sick with cancer, or flu like stuff one day but the relief I have received thus far is worth the risk.

I have so many health issues. It wears me out. It is exhausting being so sick with so many problems. None of which have a cure either! It is a daily battle for me to get out of bed and carry on my day as normally as I can to fit in to society. Some days I just hold myself up at home because that is all I can do those days. I have a tarlov cyst that is a constant source of pain. I have a neuroma that is a constant source of nerve pain, burning sensations, and fatigue. I have fibromyalgia which has become a nightmare of burning muscles, weak muscles, over active sensory problems like over sensitive to light, sun, noise, smells, and motion. Now on top of those things I have A.S. Which is a progressive arthritis of the spine and joints. The A.S leaves me fatigued, pain in the back, knees, elbows, feet, hips, neck and lower back. It is so damn exhausting!

There have been many nights I have thought about ending it all. To be honest the only thing that keeps me around are my beautiful daughters. I love them so much. I love being their mom. They are why I live. I know it is sad to read that I am suicidal and probably makes you wonder how stable am I to even think these things…well it might not be normal to think about ending it for you…but I know living with chronic pain the way I do makes it very normal. I am not a risk to myself because I have found something to live for even in the darkest hour of my pain, illness and fatigue. My kids. I have not found a way to stop the ideas from creeping into my thoughts at times but I don’t act on them. I don’t think I ever would for a few reasons. The biggest being my wonderful daughters. The second is my faith in Christ. I know I suffer these ailments for a reason. I am not sure the reason yet in my life but when it is all said and done it will be clear why I had to live my life the way he chose. The final reason are the friends I have today. The support they have for me is like coming up for fresh air in the middle of an ocean.

I try very hard to stay positive. I wake up and tell myself something positive and remind myself through the day that I have so much to be thankful for so do not focus on the pain. Some days this is so hard to do…some days I am so tired from fighting against the pain that I have no energy left for anything and that to breathe takes everything left in me.

Living a life like mine isn’t easy. It doesn’t help when you don’t get support or understanding from those around you either. I know I have had friends think I didn’t care for them as much as I say because I don’t hang out with them often. I don’t call them a lot. I am not sure what to do about that. My energy reserve is very low and most of what I do have has to go to my two kids first. Usually I have none left to share with anyone. When I am working it is even worse. Hell my kids then get very little of my time. I work, cook dinner and go right to bed only to repeat this same routine five days a week. I get a summer vacation when school is out so that is a nice break for me. The summer break allows my kids to get more of my time and energy. Unfortunately my friends do not.

Is that fair? No I don’t think it is. I only know that I can’t change the way I feel. I take one day at a time. I hope I have friends now that understand this part of me and know I do love them regardless of the time we spend together. I have lost lots of friends over the years because I am sick. They got pissed off I couldn’t do what they wanted me to do and quit talking to me. The friends I have lost I know now were just users. They were only my friend because I could do something for them at the time. When it came down to the point in my life I couldn’t help them they weren’t interested. Sure, it hurts to lose friends in the moment, but as I have had time pass I have come to realize they were really never friends. They were what I call users. We all have these in our lives at some point. Some hang on to them longer then they should if you ask my opinion.

Anger is a huge issue I have. I fight the anger demon daily too. I get so pissed off at my circumstance. It eventually leads to loneliness. I feel angry that I’m sick and can’t do the great things I want to do then I end up feeling lonely because I realize in this battle I am truly alone. I am the one who has to walk with the pain, sleep with the pain, wake with the pain and no one knows this but me. It gets hard for those around me to understand because I don’t look sick. I look like a vibrant 35 year old woman but my looks deceive you.

The pain is a third wheel in all my relationships. It gets pretty damn exhausting carrying this wheel around everywhere I go. It interferes with friendships, my marriage, my relationship with my children, hell it even interferes with my own self on a daily basis. It is crazy I have to wake up every single day and have a plan on what I will spend my energy on. I have some energy for a shower, some energy for my kids, some energy for cooking dinner, doing laundry that day, and energy to give to my husband when he gets off work. Hell most of the time I have NONE when he gets home and it is very frustrating. It gets even more frustrating when he doesn’t seem to grasp understanding of what all is wrong with me.

addiction

I am also a recovering addict. The health shit I carry around interferes with my sobriety on a daily basis. I am an opium addict. I became an opium addict in 1995. I left home to clean myself up in 1999. I have had one relapse in sobriety and that was in 2006 after my first back surgery when a doctor put me on Oxycontin. I abused the pills for about a year and in 2007 I went cold turkey again and have battled everyday since to stay clean. The Oxycotin battle went well into 2011. My addiction did not start with pills though. My addiction started with smoking it in a pipe. I think about opium every single day at least once. I think about how numb it makes you and how you feel no pain on it. I think to myself often if I could just smoke a pipe of opium I’d have no pain at all and could be normal…being a chronic pain patient makes being a recovering addict even harder to do.

Right now I wish I was high. If I were high right now I wouldn’t feel the pain in my lower back, my hands wouldn’t be aching, and my neck and shoulders would be completely relaxed. These are just some things I think about on a daily basis. What stops me from acting on these thoughts? Well simple….my kids. Again they are the reason I try to be a role model. I want them to have the best life possible and grow into responsible, caring, normal adults and that requires me to stay clean.

I am very fortunate. I know many addicts don’t get away from the grasp of opiates. Hell most end up heroin addicts. I know this. I’ve lost friends to this trend of opiate abuse that lead them to heroin. If I had not left home when I did I probably would have been led to heroin too. I would have used it to medicate my pain away and would have ended up strung out on it and eventually killing myself. I know this without a doubt. I know once you do heroin it grips so tightly that it is a miracle to get away from it. I take one day at a time.

I avoid opiate users. I have had doctors note my medical file to avoid long term prescriptions and if ever prescribed it must be very small amount and there must be no other options. I am glad I was educated enough at the time I left my hometown that I knew to have a successful shot at staying clean you had to change your entire life scene. That is what I did and I think that is why I was successful in getting clean and staying clean for so long. I honestly think I would not have relapsed at all had I not been put on Oxycontin for pain. These things happened for a reason. I am not 100% sure the reason but I know Christ has one. Maybe it was to make me a better mother then what I would have been had I not done these drugs. Maybe it was to show others that it can be done. YOU CAN GET CLEAN and stay that way. Maybe I became an addict because I was suppose to leave my hometown so I could have a shot at a better life. I don’t know. All I know is I am thankful. Even when I wake angry about it, even when I feel so lonely in it all, even when I think that things would be better if I ended it, I end up where I belong. I end up being thankful and remembering why I carry on. I remember how I cleaned myself up and understand that in itself is a remarkable feat.

I know having chronic pain for the rest of my life is not going to be easy. It hasn’t been easy yet. I know living with my pain leaves me very vulnerable to relapsing again. These things I make sure I don’t forget. It keeps me vigilant against the monster lurking just around the corner in a pill bottle, a pipe, or powder. I take one day at a time and pray often. I love my friends that understand my problems and are there to support me when I need them. I love them for understanding that even if I can’t hang with them often I think of them often. They are the other reason I stay clean and carry on.

Everyone has their own story to tell. Everyone has their own struggle to fight. This is just a piece of mine. Thank you for reading. It felt good to let it out.