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Update on FNL with Pancreatic cancer & My life with fibromyalgia

(FNL-Father N Law/ MNL- Mother N Law)

Hello everyone. Sorry I haven’t put anything up with any real substance. I’ve been avoiding the FNL and pancreatic cancer subject. It hurts to think about it. My health hasn’t been the greatest either.

I’ll give you a quick update. My FNL is losing weight each week, but his spirit is still up. His appetite is steady so I’m happy to hear that. He takes his chemotherapy every time it’s due & that takes five hours. He is usually exhausted afterwards and takes a good week to recoup from it all according to my MNL. I only have phone contact. We haven’t been able to get back over to visit. My husband is going over to spend some time with his dad though this coming week for a few days. It will be good for him and his dad.

I was going to have my tubes tied but decided to have a five-year UID instead. That procedure went OK but boy my uterus wasn’t happy for a few days at all. I still have times during the day where I just cramp up. I get to go off the depo-shot so hopefully I lose another ten pounds. My fibromyalgia has not been friendly to me. I’m exhausted all the time but I don’t sleep worth a damn.

I’m trying to come up with a new look for the blog here. It might not stay this way either I don’t know. It looks like I may end up moving the entire blog in order to have a chance to make a little money off of it. I’ll keep you posted on what the future holds on that. I added a poll to the side feel free to vote! Also the stormierachie to the right is my twitter application.

Well I need to get a few loads of laundry done even though I don’t feel like doing it. I’ll post again soon, thanks for reading. Until next time….BE SAFE!

JO

Conquering Fibromyalgia- new network I created, come join!

I went back on my lyrica yesterday. I couldn’t stand the pain any longer. I couldn’t do anything being off the pill. Yesterday was an OK day. I was able to drive to ChinaMart, I mean WalMart, do some dishes, and cook dinner without any major pain problems!

I wanted to lose more weight so I quit taking the lyrica but now I see that I have to be happy with my body the way it is. The extra weight is something I have to live with I guess. I’ll only be able to lose another ten pounds according to the doctor and she can’t guarantee that due to the cymbalta, and the depo birth control shot I take. Both of those put weight on users.

I decided to start a new network group. I named it Conquering Fibromyalgia. I hope that you click over and join. Help support the cause. Eventually I would love for it to turn into a huge network with people meeting locally in support groups for fibromyalgia. I don’t have anything local in my area to support me. I think there should be a local gathering of support all over the nation. The closest thing I have regarding support group is Minneapolis! I can’t drive that far so lets hope the network grows and something comes along for my local area!

Whether you believe me or not it is really hard to deal with having fibromyalgia. People who don’t have the illness have no clue what it is like. Talking with them really doesn’t help most of the time. Most of the time when you try to talk to someone who doesn’t have fibromyalgia it just escalates tension in the relationship. No matter what relationship it is, it causes tension because it is quite simple. They do not understand what it is like to live with this disease.

The network can be a place to share your own story of suffering from fibromyalgia. It could be a place for you to learn more about the illness so that you can support your friends and family. The network can be a place where you gather to discuss the difficulties you have had with the illness, whether you have it, or someone you know has it. Please come over and support the network. Help me grow it large enough so that others eventually can have a local connection of support in the area they live in.

I’ll be posting another entry later this evening about how my day went today fighting my fibromyalgia. Until next time…

GodBlessYou