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Update on FNL with Pancreatic cancer & My life with fibromyalgia

(FNL-Father N Law/ MNL- Mother N Law)

Hello everyone. Sorry I haven’t put anything up with any real substance. I’ve been avoiding the FNL and pancreatic cancer subject. It hurts to think about it. My health hasn’t been the greatest either.

I’ll give you a quick update. My FNL is losing weight each week, but his spirit is still up. His appetite is steady so I’m happy to hear that. He takes his chemotherapy every time it’s due & that takes five hours. He is usually exhausted afterwards and takes a good week to recoup from it all according to my MNL. I only have phone contact. We haven’t been able to get back over to visit. My husband is going over to spend some time with his dad though this coming week for a few days. It will be good for him and his dad.

I was going to have my tubes tied but decided to have a five-year UID instead. That procedure went OK but boy my uterus wasn’t happy for a few days at all. I still have times during the day where I just cramp up. I get to go off the depo-shot so hopefully I lose another ten pounds. My fibromyalgia has not been friendly to me. I’m exhausted all the time but I don’t sleep worth a damn.

I’m trying to come up with a new look for the blog here. It might not stay this way either I don’t know. It looks like I may end up moving the entire blog in order to have a chance to make a little money off of it. I’ll keep you posted on what the future holds on that. I added a poll to the side feel free to vote! Also the stormierachie to the right is my twitter application.

Well I need to get a few loads of laundry done even though I don’t feel like doing it. I’ll post again soon, thanks for reading. Until next time….BE SAFE!

JO

Conquering Fibromyalgia- new network I created, come join!

I went back on my lyrica yesterday. I couldn’t stand the pain any longer. I couldn’t do anything being off the pill. Yesterday was an OK day. I was able to drive to ChinaMart, I mean WalMart, do some dishes, and cook dinner without any major pain problems!

I wanted to lose more weight so I quit taking the lyrica but now I see that I have to be happy with my body the way it is. The extra weight is something I have to live with I guess. I’ll only be able to lose another ten pounds according to the doctor and she can’t guarantee that due to the cymbalta, and the depo birth control shot I take. Both of those put weight on users.

I decided to start a new network group. I named it Conquering Fibromyalgia. I hope that you click over and join. Help support the cause. Eventually I would love for it to turn into a huge network with people meeting locally in support groups for fibromyalgia. I don’t have anything local in my area to support me. I think there should be a local gathering of support all over the nation. The closest thing I have regarding support group is Minneapolis! I can’t drive that far so lets hope the network grows and something comes along for my local area!

Whether you believe me or not it is really hard to deal with having fibromyalgia. People who don’t have the illness have no clue what it is like. Talking with them really doesn’t help most of the time. Most of the time when you try to talk to someone who doesn’t have fibromyalgia it just escalates tension in the relationship. No matter what relationship it is, it causes tension because it is quite simple. They do not understand what it is like to live with this disease.

The network can be a place to share your own story of suffering from fibromyalgia. It could be a place for you to learn more about the illness so that you can support your friends and family. The network can be a place where you gather to discuss the difficulties you have had with the illness, whether you have it, or someone you know has it. Please come over and support the network. Help me grow it large enough so that others eventually can have a local connection of support in the area they live in.

I’ll be posting another entry later this evening about how my day went today fighting my fibromyalgia. Until next time…

GodBlessYou

Pancreatic cancer leaves weeks maybe months to live…

We went and visited my father n law. He doesn’t look good to me. I don’t know if it is because I know he is terminally ill with pancreatic cancer or if he really does look bad. Does that make any sense to any of you?

He has lost weight. He has lost a lot of weight if you ask me. His stomach is now looking extended and his pain isn’t easing. He was happy to see his grandbabies though and we all were happy to see him.

I spoke with him about hospice. I bought him some ensure and fresh fruits. He said he would talk to the doctor about hospice when it gets worse. I just wanted to make sure he’s taken care of and has little to no pain. I know from experience with my dad having cancer that they are great to have around.

I am trying to be strong for my oldest daughter and my husband. It is hard. I love my father n law very much. He has always treated me kind and accepted me from the very beginning without reservation. I could have been a psycho woman coming into his home when I got with his son but he accepted me immediately as family. I’ve always looked at him as my father in a way. We may have had minor disagreements through the years but who hasn’t? That doesn’t change the fact that it will hurt me very badly to lose him too. I worry for my husband…his dad is what my dad was to me. My dad has been gone for 13 years and I still have a void in my heart.

I’m not sure when we’re going back over there to stay. I’m guessing within a few weeks. The doctor told my father n law he had weeks maybe months. That is not exactly what I wanted to hear. I was hoping the doctor would have said months maybe a year…

Please continue to pray for my family in this time of great sorrow. Maybe there is a miracle waiting for us…

Until next time….
Be safe!

FNL- it is pancreatic cancer…

Well I don’t know how doctors can get away with what they’ve put our family through. The first time my father n law was told he had cancer in the pancreas, spots on his liver, and a shadow on his lung. For a week we cried, and worried about the outcome of it all. I researched all I could to learn about pancreatic cancer. For one whole week we went through hell of worrying then he was told it wasn’t cancer!

I was so happy to hear that it was a mistake they made on diagnosis and that it could just be pancreatitis.

Another week went by and his pain got worse and ended up being sent to the hospital for tests from the doctor who thought it could have been pancreatitis. The tests came back and he was told again it was pancreatic cancer. He was told it has gone to his liver. So again we’re in hell of worrying what the future holds, or how long we have left with him.

How can a doctor get away with this shit? Tell a man he’s dying, then say he is ok but in the end be the one to tell him it is indeed cancer. Isn’t there a rule they follow in ethics that you don’t diagnose a person with any type of cancer until it is 100% known so that they prevent these types of incidents?

It is grim. We haven’t told my oldest daughter. I don’t know how to even begin to tell her that her Opa is going to die. It will be so devastating for her. I hope I am strong enough to be there for her and my husband. It will be so difficult for him to let his dad go….

I just pray God gives me the strength to get through this for my family. I’m the one who needs to be the rock here…how do you tell an eight-year-old, news like this?

Health Update and Lotion causing cancer? Check your household stuff!

I went into my doctor and forgot all about asking for Chantix. I am still a non-smoker. It is tough. I think about them constantly but I have not broke down.

She ordered an abdomen ct scan to be done to check out the pain I’ve been having on my lower left side. Turns out I have diverticulosis. This could pose a problem in the future if I don’t keep things moving. Right now I am safe from infection but I must take steps to insure that future infections don’t happen.

Diverticulosis is pouches inside your intestines usually created due to constipation. Infection can set in these pouches and cause some serious problems if not watched over. The best thing to do is increasing your fiber and make sure things are moving properly.

She decided to up some other meds I have instead of putting me back on the lyrica for now. We’ll see in a month how that does. The fibromyalgia pain has been pretty bad and I can hardly do my daily things right now but at least I am not sleeping all day. My husband has had to take over doing laundry for the time being and most of the time he has had to do the dishes. I am hoping in a couple weeks the increase in the other meds will help lower my pain level so that I can do some of my daily chores around the house.

The topamax increase might help with my headaches. I don’t even know why they have shown back up suddenly with a vengeance. We’ll see how it does.

I was shocked to hear about skin lotions containing chemicals known to cause cancer the other day! I had to go through all my items and 90% of what I had in the house had to be thrown out due to being such a high risk of causing cancer. You can check your own items at this link SkinDeep

I found out that most of the stuff I had been using on my baby girl was very high rated. Johnson’s baby lotion and baby baths! I was infuriated, and I still am. I would like to know how they can get away with putting that shit into stuff we use daily? The chemicals are known for fact to cause cancer and other ailments like deformities, learning disabilities and some other stuff. The products don’t even have to warn us about these chemicals being inside the product. Looks like we all have to get irate and hold them accountable just like we had to with the makeup industry.

Sometimes I wonder to myself why even quit smoking when all the other crap out there is causing cancers left and right without even warning us. Sometimes I wonder what is the point trying to avoid cancer? There seems to be no way to avoid it these days with all the shit they put in our food, lotions, shampoos, prescriptions, etc.

My head is starting to hurt now so I have to go. Have a safe evening.