Category Archives: Page Updates

Update on FNL with Pancreatic cancer & My life with fibromyalgia

(FNL-Father N Law/ MNL- Mother N Law)

Hello everyone. Sorry I haven’t put anything up with any real substance. I’ve been avoiding the FNL and pancreatic cancer subject. It hurts to think about it. My health hasn’t been the greatest either.

I’ll give you a quick update. My FNL is losing weight each week, but his spirit is still up. His appetite is steady so I’m happy to hear that. He takes his chemotherapy every time it’s due & that takes five hours. He is usually exhausted afterwards and takes a good week to recoup from it all according to my MNL. I only have phone contact. We haven’t been able to get back over to visit. My husband is going over to spend some time with his dad though this coming week for a few days. It will be good for him and his dad.

I was going to have my tubes tied but decided to have a five-year UID instead. That procedure went OK but boy my uterus wasn’t happy for a few days at all. I still have times during the day where I just cramp up. I get to go off the depo-shot so hopefully I lose another ten pounds. My fibromyalgia has not been friendly to me. I’m exhausted all the time but I don’t sleep worth a damn.

I’m trying to come up with a new look for the blog here. It might not stay this way either I don’t know. It looks like I may end up moving the entire blog in order to have a chance to make a little money off of it. I’ll keep you posted on what the future holds on that. I added a poll to the side feel free to vote! Also the stormierachie to the right is my twitter application.

Well I need to get a few loads of laundry done even though I don’t feel like doing it. I’ll post again soon, thanks for reading. Until next time….BE SAFE!

JO

Conquering Fibromyalgia- new network I created, come join!

I went back on my lyrica yesterday. I couldn’t stand the pain any longer. I couldn’t do anything being off the pill. Yesterday was an OK day. I was able to drive to ChinaMart, I mean WalMart, do some dishes, and cook dinner without any major pain problems!

I wanted to lose more weight so I quit taking the lyrica but now I see that I have to be happy with my body the way it is. The extra weight is something I have to live with I guess. I’ll only be able to lose another ten pounds according to the doctor and she can’t guarantee that due to the cymbalta, and the depo birth control shot I take. Both of those put weight on users.

I decided to start a new network group. I named it Conquering Fibromyalgia. I hope that you click over and join. Help support the cause. Eventually I would love for it to turn into a huge network with people meeting locally in support groups for fibromyalgia. I don’t have anything local in my area to support me. I think there should be a local gathering of support all over the nation. The closest thing I have regarding support group is Minneapolis! I can’t drive that far so lets hope the network grows and something comes along for my local area!

Whether you believe me or not it is really hard to deal with having fibromyalgia. People who don’t have the illness have no clue what it is like. Talking with them really doesn’t help most of the time. Most of the time when you try to talk to someone who doesn’t have fibromyalgia it just escalates tension in the relationship. No matter what relationship it is, it causes tension because it is quite simple. They do not understand what it is like to live with this disease.

The network can be a place to share your own story of suffering from fibromyalgia. It could be a place for you to learn more about the illness so that you can support your friends and family. The network can be a place where you gather to discuss the difficulties you have had with the illness, whether you have it, or someone you know has it. Please come over and support the network. Help me grow it large enough so that others eventually can have a local connection of support in the area they live in.

I’ll be posting another entry later this evening about how my day went today fighting my fibromyalgia. Until next time…

GodBlessYou

I’m alive! Sorry for the long break folks…

I am sorry to all my readers for the long break. I hit some difficult times with health and it is just so difficult to get downstairs to my office for computer time, especially when you are taking care of two girls. I love my girls so much. The oldest is 7 and the youngest is 18 months. They are absolutely beautiful I must say!

Anyway, I thought since I was able to get to the computer for some time I’d post an entry that has so long been needed.

I am almost completely finished with my perennial garden planting. It has been a very daunting task for me to get out there to plant the bulbs and plants. Doing the garden work put me into rapid numbers of fibromyalgia attacks and at times I was down for days. I’ve been fighting depression again too. I am so worried about winter coming and how it is going to affect me.

Some of you might want an update about my gall bladder surgery in June. I am doing great! Glad that sucker is out finally! I can eat most of what I want. I have a few things I have to stay away from now that my gall bladder is gone. What a traitor that gall bladder was to me!

I have not written my dad lately so that will be coming to post shortly. I have a lot to tell him and a lot on my mind. Some call it crazy that I still write to him and it will be thirteen years in March since he’s died. I don’t care though if people think it is crazy. It is very helpful for me, and my soul. I also plan to write my aunt Eve…boy with that be heart wrenching and very sad. Things I want to tell her will hurt her so…but I am sure she sees it already. She’s been gone three years now. Time flies I have noticed with loved ones lost. It is strange. One day they are here and the next thing you know they’ve been gone for ten years but it still feels as though you are stuck in the first year.

I have some things I’ve volunteered for through my daughter’s school that I am very excited about. I just hope that I’ll be able to go volunteer through the winter with fibromyalgia being a small problem. I’ve been on my lyrica now for almost a year and I’m afraid I’ve built up a tolerance to it! I am taking three pills a day sometimes when I am only supposed to be taking two 225mg capsules. I definitely have to talk to the doctor about my dosage problem.

I am going to be working on getting a new laptop the first of the year. It will make it so much easier to access my BLOG here, keep track of my PTO information, help out with my political stuff, and do my writing.

Well, it’s late here in MN so I have to go. I hope I get to post my letter to dad and my aunt Eve soon for you to read. Thank you for stopping by and hope you return again!

Until next time…

Working on The Seed Of Infidelity Pt 5 now….

Things have been up and down with me the past few weeks. I’ve had some post op situations I’ve had to take care of. I’ve had quite a few bouts of fibro attacks to deal with. I also have had to try to get as much gardening done as possible. Not to mention taking care of my kids while all this is going on!!! Boy was I running on empty for a while.

Sorry I have been so neglectful here at JustOrdinary. Hopefully that will change soon.

I have however started writing part five of The Seed Of Infidelity. It should be finished soon for those of you following that story. It has been an interesting story for me to write….hard at times of course…but also nice to have something flowing out of me.

I just wanted to update you all on what is going on in my hectic life and what will be coming to JustOrdinary soon! I know some people are just waiting for the next piece. Sorry it has taken me so long to get back to that story. When life takes over what can you do? You know.

Well, hope all is well with my readers. I’ll be posting for you again soon!

Take care!

JO

Be The Blog Award Goes to….

LingoSlinger

Be The Blog award