Category Archives: Fibromyalgia

Update on FNL with Pancreatic cancer & My life with fibromyalgia

(FNL-Father N Law/ MNL- Mother N Law)

Hello everyone. Sorry I haven’t put anything up with any real substance. I’ve been avoiding the FNL and pancreatic cancer subject. It hurts to think about it. My health hasn’t been the greatest either.

I’ll give you a quick update. My FNL is losing weight each week, but his spirit is still up. His appetite is steady so I’m happy to hear that. He takes his chemotherapy every time it’s due & that takes five hours. He is usually exhausted afterwards and takes a good week to recoup from it all according to my MNL. I only have phone contact. We haven’t been able to get back over to visit. My husband is going over to spend some time with his dad though this coming week for a few days. It will be good for him and his dad.

I was going to have my tubes tied but decided to have a five-year UID instead. That procedure went OK but boy my uterus wasn’t happy for a few days at all. I still have times during the day where I just cramp up. I get to go off the depo-shot so hopefully I lose another ten pounds. My fibromyalgia has not been friendly to me. I’m exhausted all the time but I don’t sleep worth a damn.

I’m trying to come up with a new look for the blog here. It might not stay this way either I don’t know. It looks like I may end up moving the entire blog in order to have a chance to make a little money off of it. I’ll keep you posted on what the future holds on that. I added a poll to the side feel free to vote! Also the stormierachie to the right is my twitter application.

Well I need to get a few loads of laundry done even though I don’t feel like doing it. I’ll post again soon, thanks for reading. Until next time….BE SAFE!

JO

An update for my readers on the cancer & my own health

So I thought I’d write and give an update to my readers on my FNL and myself.

For myself I’ve had a tough time with muscle tenderness. I feel like I’ve been beaten badly all over. It hurts to sit, hell it hurts to move at all. I think the little yard work I did brought this fibromyalgia attack on. I’ve been feeling this way for 3 days now. The meds I have are not helping at all. I’ve been using heat wraps to ease it. I will survive this. It will pass. Now about my FNL…

He had his second chemotherapy session. It was worse then the first. It gave him bad diarrhea, and this time it had him throwing up. It drained him of most of his energy so he slept a lot afterwards. This lasted a few days or so.

Now he is back in the normal “denial” living as best he can. He’s having some remodeling done in his home so the small projects are keeping him occupied and his mind off the cancer I imagine. I imagine that is his goal. His goal is to not think about the cancer or the fact he’s dying soon at all.

We haven’t been able to get over there to visit again. We plan to go soon though I just hope there is time. Talking on the phone he sounds great! His spirits are high. His white blood cells are staying up so the chemotherapy hasn’t affected that yet and hopefully it won’t so he won’t have to skip any sessions. I love his strength facing such a devastating situation. I do think of him as a dad even though he is only a father by marriage. I’ve had ten years with him so far and they have been good years. We’ve never fought. He has always treated me great. He treats me like a daughter and always has. I am very sad over this but I try to hide it from my husband and daughters. They will need me to be the rock in this situation. Please pray for me to be able to do that. I haven’t been very good at being a rock for a while now.

I love all my readers and I wish you happiness, good health and safety. Until next time…

I will pray for you J
JO

An update of a few things

I called my FNL yesterday. He sounded good. I was so glad to hear he was in good spirits. He said his pain wasn’t so bad and he is drinking ensure everyday like I asked him to do. He said his appetite is great and he has only lost ten pounds so far. He lost that due to diarrhea. The chemotherapy is causing it. They told him to drink Imodium to prevent it next treatment he has.

There is so much going on in my life right now. It almost makes me feel nausea. I feel at the verge of throwing up. Ever have that feeling?

I have kids to take care of. A home to keep up, a husband to keep happy, medicine to remember to take, doctor appointments out the yin yang to keep, yard work to try to get done little by little, flowers to put out for this season, my brother says something is wrong with his blood work he had done, my uncle just had a stroke, my mom keeps getting pneumonia, my fibromyalgia seems to be out of control, I’m not sleeping well, I’m trying hard to lose weight and I am not winning that battle! I’m falling back into depression, and I can’t finish my book The Seed Of Infidelity. WOW that is a lot I think. Oh and sometimes I forget to eat through the day.

I’m so tired. I can’t do this blog anymore right now….

Conquering Fibromyalgia- new network I created, come join!

I went back on my lyrica yesterday. I couldn’t stand the pain any longer. I couldn’t do anything being off the pill. Yesterday was an OK day. I was able to drive to ChinaMart, I mean WalMart, do some dishes, and cook dinner without any major pain problems!

I wanted to lose more weight so I quit taking the lyrica but now I see that I have to be happy with my body the way it is. The extra weight is something I have to live with I guess. I’ll only be able to lose another ten pounds according to the doctor and she can’t guarantee that due to the cymbalta, and the depo birth control shot I take. Both of those put weight on users.

I decided to start a new network group. I named it Conquering Fibromyalgia. I hope that you click over and join. Help support the cause. Eventually I would love for it to turn into a huge network with people meeting locally in support groups for fibromyalgia. I don’t have anything local in my area to support me. I think there should be a local gathering of support all over the nation. The closest thing I have regarding support group is Minneapolis! I can’t drive that far so lets hope the network grows and something comes along for my local area!

Whether you believe me or not it is really hard to deal with having fibromyalgia. People who don’t have the illness have no clue what it is like. Talking with them really doesn’t help most of the time. Most of the time when you try to talk to someone who doesn’t have fibromyalgia it just escalates tension in the relationship. No matter what relationship it is, it causes tension because it is quite simple. They do not understand what it is like to live with this disease.

The network can be a place to share your own story of suffering from fibromyalgia. It could be a place for you to learn more about the illness so that you can support your friends and family. The network can be a place where you gather to discuss the difficulties you have had with the illness, whether you have it, or someone you know has it. Please come over and support the network. Help me grow it large enough so that others eventually can have a local connection of support in the area they live in.

I’ll be posting another entry later this evening about how my day went today fighting my fibromyalgia. Until next time…

GodBlessYou

Health Update and Lotion causing cancer? Check your household stuff!

I went into my doctor and forgot all about asking for Chantix. I am still a non-smoker. It is tough. I think about them constantly but I have not broke down.

She ordered an abdomen ct scan to be done to check out the pain I’ve been having on my lower left side. Turns out I have diverticulosis. This could pose a problem in the future if I don’t keep things moving. Right now I am safe from infection but I must take steps to insure that future infections don’t happen.

Diverticulosis is pouches inside your intestines usually created due to constipation. Infection can set in these pouches and cause some serious problems if not watched over. The best thing to do is increasing your fiber and make sure things are moving properly.

She decided to up some other meds I have instead of putting me back on the lyrica for now. We’ll see in a month how that does. The fibromyalgia pain has been pretty bad and I can hardly do my daily things right now but at least I am not sleeping all day. My husband has had to take over doing laundry for the time being and most of the time he has had to do the dishes. I am hoping in a couple weeks the increase in the other meds will help lower my pain level so that I can do some of my daily chores around the house.

The topamax increase might help with my headaches. I don’t even know why they have shown back up suddenly with a vengeance. We’ll see how it does.

I was shocked to hear about skin lotions containing chemicals known to cause cancer the other day! I had to go through all my items and 90% of what I had in the house had to be thrown out due to being such a high risk of causing cancer. You can check your own items at this link SkinDeep

I found out that most of the stuff I had been using on my baby girl was very high rated. Johnson’s baby lotion and baby baths! I was infuriated, and I still am. I would like to know how they can get away with putting that shit into stuff we use daily? The chemicals are known for fact to cause cancer and other ailments like deformities, learning disabilities and some other stuff. The products don’t even have to warn us about these chemicals being inside the product. Looks like we all have to get irate and hold them accountable just like we had to with the makeup industry.

Sometimes I wonder to myself why even quit smoking when all the other crap out there is causing cancers left and right without even warning us. Sometimes I wonder what is the point trying to avoid cancer? There seems to be no way to avoid it these days with all the shit they put in our food, lotions, shampoos, prescriptions, etc.

My head is starting to hurt now so I have to go. Have a safe evening.