Nasal Sores, Fibromyalgia, and Sjogens Syndrome

The nasal sores appear every 2 to 4 months. I have had this problem for at least a year. I’ve done extension research on this problem and unfortunately it has only led me to the conclusion that it is most likely to be nasal impetigo. This is a bacterial infection and our fingers carry this on them.

I’m not sure this is my diagnosis for the nasal sores I get. I have made an appointment with an ENT for Monday of next week. Hopefully he’ll get to the bottom of this problem for me and give me a solution to getting rid of them quickly when they do show up.

As my previous readers know I have fibromyalgia and I have read that nasal sores are common with people who have FMS (Fibromyalgia). This very well could be another plague I just have to live with.

I have found that if you have been diagnosed with fibromyalgia it is possible that you may have an autoimmune disease called sjorgrens syndrome. This might be a diagnosis for me as well. I don’t know. I do have most of the symptoms listed.

Symptoms for sjorgens syndrome:

1. extreme fatigue
2. persistent burning or dry eyes
3. gritty sensations in the eyes
4. difficulty speaking
5. sore or cracked tongue
6. unexplained dental problems
7. dry nasal passages
8. difficult swallowing or chewing

Many experts believe that Sjogren’s has a genetic basis to it. This hypothesis is supported by the fact that the syndrome is often found in families that have a history of other autoimmune diseases, such as lupus, multiple sclerosis and fibromyalgia, and by the fact that it is not unusual to find the disorder in other family members. Moreover, the vast majority of people affected by Sjogren’s are female (about 90% of sufferers), again lending credence to a genetic link.

The information above came from Fibromyalgia Symptoms

I have tested negative for RA factor, and my tests for SLE (Lupus) have been negative. These both run in my family though so that makes it more possible that I may have Sjorgens Syndrome.

Diagnosis of Sjorgens Syndrome:
1. Schirmer’s test – test the dryness of the eyes and mouth. It is a strip they place under the eyelid and bottom lip of the mouth. (saliva-gland biopsy)
2. Blood tests for ANA’s present in the blood stream. ANA’s are anti-nuclear antibodies. They will also test the blood for SS-A and SS-B antibodies.

Low red blood count (Anemia) and abnormal blood testing for inflammation are seen which is the SED rate in a person. (Sedimentation rate)

This syndrome can be a cause of nasal sores. It is more likely to be the cause if you’ve been diagnosed with fibromyalgia according to the fibromyalgia information I’ve read. Don’t diagnose yourself. It is best you reach out to your own GP to get blood tests done for these things if you have any concern or symptoms.

I am not a medical doctor so I can’t give expert advice on what to do if you suffer from nasal sores either. I can only put up information I’ve obtained throughout my search for relief. Always consult your medical doctor for advice on what treatment should be tried and always seek a medical doctor to give you a proper diagnosis.

Soon I hope that my ENT will give me some answers and relief for my nasal sores.

Until next time….

About JustOrdinary

Hello my name is Rachel…around here I’m best known as Just Ordinary. I created this blog page to share pieces of my life with you, the reader, also to share my projects, and writings. This blog page I have created is a collection of realty and fiction. Not everything I write pertains to me or my life.

Posted on Wednesday, August 20, 2008, in Fibromyalgia, health, journal, Journal Pages, life, medical and tagged , , , , , , . Bookmark the permalink. 7 Comments.

  1. I was told two weeks ago that I have fibermyalgia, and I have been experencing sores in my nose since 2005. I am in shock, and this is all new to me. What next. I can’t wait until I go to my doctor and tell her about this new finding. She get this stupid look on her face. Msmerced@sbcglobal.net

  2. Listen, very important. I have Celiac Disease and Sjogens Syndrome. If you have any type of autoimmune disorder, please do extensive research on Celiac. After researching this and all the associated symptoms, I realize that all my issues cleared up when I went on a gluten free diet. I could list the symptoms here, but they are way too extensive. Anyone with IBS, fibromyalgia, psoriasis, aches and pains, arthritus, dry eye, neuropathy, trouble breathing and about any other issue should research Celiac – including those diagnosed with Lime Disease. Do yourself a favor and do the research. Google on things like “Testimonials of people who stopped eating wheat” and find out just how many people were cured of these other so called diseases. Symptoms just vanish. Good luck to you!

  3. I agree with the person above about Celiac Disease, but don’t just go on a gluten free diet. You need to be tested for Celiac Disease first. If you eat gluten free and have the testing, they’ll come back negative even if you’re got it. A gluten free diet can be quite harmful to someone who doesn’t need to be on it. The gluten free replacements like gf bread or pasta are high in fats, sugars, salts and low in fiber and often missing important nutrients. So you could be doing more harm to yourself, increasing the chance of high blood pressure, excess fat and a number of other problems. Being low in fiber means you’ll eat more to feel hungry and you’ll become less regular. Unless you have Celiac Disease or have been diagnosed with an allergy or an intolerance then there’s no reason a GF diet will help. And for those it does help, there’s probably an underlying reason for that (i.e. you might have an intolerance, instead of or rather than the condition you were diagnosed with).

  4. fleurgen mcfleurgenson

    You have zero idea what you’re talking about. A lot of gluten free options are, in fact, more healthy. Just because you test negative for celiacs, does not mean that you don’t have a gluten sensitivity. People with ANY auto immune conditon can most likely benifit from going gluten free. And, might I add, that switching from quinoa pasta, as opposed to pasta made from typical grain, is actually better for you. Consuming bread and other varieties of foods made from a variation of non-typical grains, in no way causes you to have health problems, such as high blood pressure. There is no “harm” in going gluten free.

  5. I definitely don’t have “zero idea” what I’m talking about. Celiac Disease is very prevalent in my family, my uncle who is a doctor has it. I’ve read a number of journal articles and seen a few gastroenterologists.

    I have not seen a healthier product that is a gluten free alternative to a normal food item. By removing gluten, the food item loses its flavour, texture and fails to stick together. They replace the gluten with extra salts, sugars and fats, while removing a lot of the fiber.

    I did not mention that Celiac Disease was the only reason one would need to be gluten free. I said that unless you have Celiac Disease, an allergy or an intolerance DIAGNOSED BY A DOCTOR you should not go gluten free. People with an autoimmune disease that has a bad reaction to gluten would be diagnosed with an intolerance.

    I’m not arguing that some gluten free food items could be replaced with glutened items quite well. But when one eats a strict gluten free diet when they do not need to, you put yourself as risk of unnecessary side effects like weight gain, constipation and vitamin deficiencies.

    At the end of the day it depends what you eat in your diet. If someone eats a naturally gluten free diet (i.e fish, eggs, fruit, rice, veges) then this is obviously going to be healthier than someone living on pizza. But avoiding a food group when you do not need to is unnecessary and unhealthy.

  6. Inhave had Fibrinsince 1990 and Sjogren’s for 7 years…this is the first time with nasal lesions,,,,just aw diagnosed with peptic or duodenal ulcers …had clean Gastro 3 months ago!

  7. Hi interesting read.I have had leg pain for the lst 10 yrs. I am 30 now, female.docs cant find the reason for the pain.I constantly have eye n nose scabs.I mentioned sjogrens to the specialists n he laughed at me!but after 10 yrs of pain I am doing my.own research.pain is in one leg ( its not sciatica either) does this sound fimiliar to anyone who suffers

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