Not every case of FMS is the same. Some people have a mild case of fibromyalgia. Some people have an extreme case of fibromyalgia. I, unfortunately teeter towards the severe end of the bar. I believe my case is so severe because I can’t do the physical things needed to help functionality with fibromyalgia. My other medical problem hinders me in many ways where exercise techniques would be helpful for my fibromyalgia.
I was diagnosed with fibromyalgia earlier this year. Many doctors believe that fibromyalgia is linked to a trauma suffered to the body or an underlying illness. There are many people who have fibromyalgia that have had a trauma to their body, or have an underlying illness. Lupus is one illness that closely attaches itself to fibromyalgia. Many people who have been diagnosed with Lupus do indeed have fibromyalgia as well.
It was hard for me to accept my diagnosis for a few reasons. I had not heard of fibromyalgia before. There was no concrete evidence like blood work to show I had the illness. My symptoms were so bad I had made up my mind that it had to be something very serious wrong with me that was life threatening. Eventually I understood the illness fibromyalgia more, and more with educating myself about it. I moved further to help bring awareness about fibromyalgia to those who were like me in the beginning. Many people out there still have no idea what fibromyalgia is, or what it does to a person. Bringing awareness about it is still a long road to travel. With the help of the Internet and local groups that support fibromyalgia we will eventually be recognized by more and more.
Unfortunately we still have medical doctors who do not believe that fibromyalgia exists or that it is a proper diagnosis. If at anytime you visit a doctor who doesn’t believe your symptoms exist find a new doctor. If at anytime your doctor makes you feel belittled or that you are mentally unstable over your symptoms, FIND A NEW DOCTOR! A good professional doctor will listen to your complaints of symptoms and know that fibromyalgia does exist and you might have a case of it.
Don’t try to diagnose yourself by research alone. Fibromyalgia symptoms mimic a lot of symptoms from the autoimmune disease family so you must be seen by a medical professional to rule out those illnesses before you start to treat yourself for fibromyalgia. Most importantly is to be your own advocate where your health is concerned. Ask lots of questions, research the doctor you see, keep a journal of your symptoms and the severity of them, work with your doctor to come to a proper diagnosis, and remember you have the power to refuse and accept the treatment you think is best for you.
My symptoms of fibromyalgia might not match everyone else’s FMS problems. This is one reason it is hard to diagnose and treat. I suffer from….
1. IBS (Irritable Bowel Syndrome)
2. Insomnia and waking a number of times through the night
3. Widespread pain from the neck to my feet
4. Dry eyes
5. Chronic sinus problems and allergies
8. Major fatigue
9. Nasal sores
10. Memory problems- cognitive thinking problems- known as fibro fog
12. Burning in the muscles of my shoulders and arms
Now I also have hair loss but that has not been linked to fibromyalgia. Doctors have ruled out the hair loss being from medicine, vitamin deficiency, psoriasis, balding, or alopecia, which is an autoimmune disease. I have had a problem with iron in the past and that was thought to be the reason for the hair loss. When we remedied the iron deficiency problem my hair still fell out and continues to fall out now. They have ruled out thyroid problems too. The search continues for the hair loss and who knows maybe it will be linked to fibromyalgia in the future.
If you are suffering from fibromyalgia please utilize the links I have in my sidebar for support and information. You are not alone and you really are sick even if you don’t look sick. If you don’t suffer from fibromyalgia you can also utilize the links on the sidebar to educate yourself about the illness and help spread awareness about it to your local communities. Who knows? You might have someone close to you that has it, but you don’t know they have it.
Thanks for stopping by and I hope you help spread awareness about the illness.