Monthly Archives: March 2007

I have survived 29 weeks thus far!

I have been taking things very easy. That is why I have not posted here in a while. Carrying the baby is getting a little harder for me now so I am stationary as much as possible. She is still very active in there. I can’t wait to have her! My husband and daughter are very anxious to have her come too! We are VERY happy and her birth can’t get here soon enough.

I’m 29 weeks now so it won’t be much longer. I am scared about going into labor but I’m sure things will be fine. I worry about the pain level I will have with the tumor in my back. I worry about taking the epidural and if it will prolong the process. I had my first child natural and wanted to go that route this time but have been urged to not try it in my condition.

I’ve read articles about pregnant women having this THICK LUXURIOUS hair and look at my own and pray when I see the dermatologist in April that they’ll have some answers for me about my hair loss…

Like I have stated before I believe it is Lupus.

I’ve been very tired. I take the vitamins but it hasn’t helped the anemia. I just keep telling myself just a few months it will be over with! LOL

Well I’m off to put in a quick easy dinner- everything is easy and quick for me these days or I have nothing to do with it! LOL

Until next time…

What a dreadful time I’ve had lately…

Survive

What a dreadful time I’ve been having lately! Blah! I have been so damn tired that I haven’t even felt like being on the computer. My body has been very sore too. FMS, being pregnant and having the tumor in my back just really puts a damper on things. NO MEDS! Tylenol is great and all but it just doesn’t do it for me with my pain levels.

I had my diabetes-screening test that is normally done on pregnant women and it came back elevated. OH GREAT, I thought! Then I had to set up another one that was a three hour-long test. That was NO FUN at all. I had to fast for 12 hours, and the three hours of boredom was absolutely pain staking.

Between the first one coming back elevated and the time I took the second test I completely cut sugar out of my diet. Three days I didn’t take in any sugar except what I couldn’t help. You know sugar from milk, and other things.

So today being the third day without any sugar and the day after the three-hour test I started feeling REALLY ill! I was feeling faint, clammy, and nauseated. I got so bad I called the OB worried that I may have to go to the emergency room. I wondered if I should not eat sugar because it is high or should I eat sugar because it is low. I called and talked to the nurse there and she said the second round of tests (the three hour one) came back normal. Only one of the blood draws shown low sugar but the others was OK so that ruled me out for diabetes. OH I WAS SO HAPPY! She told me that I needed to eat some sugar in order to bring the level back to normal since she thought my sugar had dropped since not having my normal intake for the three days. I did what she said and within 20 minutes or so I felt back to normal. It was rather scary for me though.

I’m happy that I don’t have to give up my sugar. I am happy that I am not diabetic while pregnant most of all. I was so worried what that meant for the baby and delivery. All is well as far as that is concerned now…thank you God!

I am very tired so I’m going to go back and lie down. I will post again when I feel up to it. Thanks for stopping by.

Until next time…

I like my GP more and more- Costochendritis

So I went to see my GP, Dr, T. I like her more and more. I asked her about those other tests they can do to check for Lupus and she explained to me that she would rather wait to do them after I give birth because she said the tests are going to come back strangely because of the pregnancy itself. She did say she wanted to check my SED rate again to see if it has gone higher. She ordered a complete blood count too to see if my red blood cells have gone lower. I have a feeling they have. I believe the rings around my eyes are from anemia, not lack of sleep.

Oh yeah sleep…my new mattress is GREAT! I’m able to lie there and sleep the whole night now! It has helped some with energy.

Anyways, back to the doctor stuff. I asked about the rings around my eyes too she said it very well could be the anemia as well.

I mentioned to her the chest pain I get at times when I breathe. I told her that I think something else is going on besides the FMS and I can’t believe this, but she AGREED!! She is concerned for the hair thinning, the chest pain and when I went in I had another sore in my mouth- she got to look at this time and she was concerned about that too.

She said for the chest pain I have something called costochendritis, which might be spelled wrong. The medicine they give for those types of things I can’t have…I’ll just have to make due the best I can.

She said she couldn’t give me any medicines for these problems because of being pregnant. She said we wanted to be extra conservative and I agreed. WE, meaning the GP and I, can you believe it, working together to figure out what is going on…anyway, we decided that I would just have to suffer for the next two and a half months and start doing tests right away after I have the baby.

I told my husband that she (the baby) would be well worth all this when she gets here. I am very excited to be having her!! I am trying to stay in the positive mode here. You know celebrate more of what I have and less of the mourning over the negative. I am doing better although that one-day I was so fuming mad was a tough one! LOL

Well have a good one…until next time…

Fibromyalgia Awareness Video finally up and running!

I finally finished the Fibromyalgia Awareness video and have it put up now. Please share this with your family and friends.

The FMS Awareness Video I Made
[livevideo id=00E32AFEA1794853BD97E846E4F884C7]

I am pissed so I warn you- strong language ahead!

So I have been spending some time over at Live Journal- the Lupus community and have received some great advice and hearing their stories there makes me believe that I do in fact have Lupus. It is frightening that so many have said it has taken them 5, 7, 9 years to finally get the positive blood work that proved Lupus. Many said that the ANA test they took was negative for a long time.

A few of them told me that the doctors should be testing me for anti-RO, anti-SA, anti cardiolipin, c-reactive protein, anti-sm and anti-dsdna. None of these have been checked with me and I am wondering why! I am pregnant so there is a risk if I have Lupus being pregnant and the ANA is not the only thing they can check me for to be sure they can rule out Lupus.

I called the Mayo Clinic but they returned my call to say the appointment was not available at this time. Just fucking great!

My ANA is negative but the doctors here have not done those other tests. I’m pregnant and now I wonder if this will hurt my baby! If I have Lupus being pregnant what will it do to the child? I have to look into that- but I’m pissed the doctors are not taking the steps to do the other tests so they can rule it out completely!

I am dealing with local doctors who don’t seem to give a damn and I’m seven months pregnant. I am fucking pissed!! Wow I haven’t been this pissed since the first visit with that jackass rheumatologist.

Well so much for the happy mood I started with today!

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